Success story
Jagan
Aug 2010
|
Name
|
Jagan
|
|
Age
|
4.5
years
|
|
Sex
|
Male
|
|
Medical
Problem
|
Guillain
Barre Syndrome
|
|
Status
|
Discharged
|
|
Date
|
04/08/2010
|
Case Background
Master
Jagan is the son of Mr. Subramani and Mrs. Kalpana. Subramani is a lorry
mechanic and earns about INR 4000/- a month. He is the only earning member of this family.
His wife, Kalpana, is a homemaker. When Jagan
was one and half years old, he was admitted to the Institute of Child Health
and Hospital For Children in Egmore. He
was facing difficulties in standing and walking for an entire day followed by
speech abnormalities and difficulties in swallowing. On the same day, a neurologist’s opinion was
taken and the doctor suspected the condition to be Guillain Barre Syndrome
(GBS). GBS is a disorder affecting the peripheral nervous system. Ascending paralysis, weakness beginning in the feet and hands and migrating
towards the trunk, is the most typical symptom for this medical condition and
some subtypes cause change in sensation as well as dysfunction of the
autonomic nervous system. It
can cause life-threatening complications particularly if the respiratory muscles get affected or if the autonomic nervous system is involved. The disease is usually triggered by an
infection. He
has been advised to get Intravenous Immunoglobulin (IVIG) which is life saving
drug. IVIG is the only treatment for GBS and Jagan required 25 grams of IVIG
for his treatment(5grams per day for 5 days).
Ekam’s Involvement
Though
IVIG is freely available at government hospital, the drug was not in stock when
needed by Jagan. So doctors suggested the child’s parents to procure IVIG from
outside. 5 grams of IVIG costed around Rs.7,500 in the year of 2010. (Current MRP
is Rs. 12,000) and the parents did not have any financial source to procure
this drug. Dr.Poovalazhi, who was the consultant of this child, approached Ekam
Foundation to provide for the child’s medicines. Ekam immediately arranged for
25 grams of IVIG. The child was shifted to ICU on the 30th July 2010 and put on
ventilator support. IVIG treatment continued till the 2nd August. The entire
recovery took one month and child was finally discharged on the 16th
of August.
Current Status
Master Jagan is now a four
and half year old healthy child and is living happy with his family.
Ekam Contact
Name : Mr.Charles Robin
Designation : Patient Welfare Officer.
Telephone
Number : 7299002848
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