Friday, 24 January 2014

Success story
Aug 2010

4.5 years
Medical Problem
Guillain Barre Syndrome

Case Background

Master Jagan is the son of Mr. Subramani and Mrs. Kalpana. Subramani is a lorry mechanic and earns about INR 4000/- a month.  He is the only earning member of this family. His wife, Kalpana, is a homemaker.  When Jagan was one and half years old, he was admitted to the Institute of Child Health and Hospital For Children in Egmore.  He was facing difficulties in standing and walking for an entire day followed by speech abnormalities and difficulties in swallowing.  On the same day, a neurologist’s opinion was taken and the doctor suspected the condition to be Guillain Barre Syndrome (GBS). GBS is a disorder affecting the peripheral nervous system. Ascending paralysis, weakness beginning in the feet and hands and migrating towards the trunk, is the most typical symptom for this medical condition and some subtypes cause change in sensation as well as dysfunction of the autonomic nervous system. It can cause life-threatening complications particularly if the respiratory muscles get affected or if the autonomic nervous system is involved. The disease is usually triggered by an infection. He has been advised to get Intravenous Immunoglobulin (IVIG) which is life saving drug. IVIG is the only treatment for GBS and Jagan required 25 grams of IVIG for his treatment(5grams per day for 5 days).

Ekam’s Involvement

Though IVIG is freely available at government hospital, the drug was not in stock when needed by Jagan. So doctors suggested the child’s parents to procure IVIG from outside. 5 grams of IVIG costed around Rs.7,500 in the year of 2010. (Current MRP is Rs. 12,000) and the parents did not have any financial source to procure this drug. Dr.Poovalazhi, who was the consultant of this child, approached Ekam Foundation to provide for the child’s medicines. Ekam immediately arranged for 25 grams of IVIG. The child was shifted to ICU on the 30th July 2010 and put on ventilator support. IVIG treatment continued till the 2nd August. The entire recovery took one month and child was finally discharged on the 16th of August.

Current Status

Master Jagan is now a four and half year old healthy child and is living happy with his family.

Ekam Contact

Name                          : Mr.Charles Robin
Designation                 : Patient Welfare Officer.
Telephone Number     : 7299002848

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